• I'm just trying to setup this echo

    From Douglas Connor@1:261/38 to All on Mon Oct 1 19:01:02 2007
    Looking to ave this echo in my system. as it may be a good place to yak.

    I was digagnoed with MS in june.
    with a vertigo problem and called dissabled. :(

    --- BBBS/LiI v4.01 Flag
    * Origin: Prism bbs (1:261/38)
  • From Janis Kracht@1:261/38 to Douglas Connor on Mon Oct 1 19:23:30 2007
    Hi Doug!

    Looking to ave this echo in my system.
    as it may be a good place to yak.

    I was digagnoed with MS in june.
    with a vertigo problem and called dissabled. :(

    Glad you found your way here :)

    Take care,
    Janis

    --- BBBS/LiI v4.01 Flag
    * Origin: Prism bbs (1:261/38)
  • From Doug Connor@1:132/500 to Janis Kracht on Mon Oct 1 19:47:02 2007
    Janis Kracht -> Douglas Connor wrote:
    Hi Doug!

    Looking to ave this echo in my system.
    as it may be a good place to yak.


    I was digagnoed with MS in june.
    with a vertigo problem and called dissabled. :(


    Glad you found your way here :)

    Thank you for your help and bbs :)


    --
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  • From Roger Nelson@1:3828/7 to Douglas Connor on Mon Oct 1 18:20:46 2007
    Looking to ave this echo in my system. as it may be a good place to yak.

    Looks like you made it. Congrats and welcome!

    I was digagnoed with MS in june.
    with a vertigo problem and called dissabled. :(

    Sorry to hear.


    Regards,

    Roger

    --- D'Bridge 2.85
    * Origin: NCS BBS (1:3828/7)
  • From Doug Connor@1:132/500 to Roger Nelson on Mon Oct 1 20:46:50 2007
    Roger Nelson -> Douglas Connor wrote:
    Looking to ave this echo in my system. as it may be a good place to
    yak.

    Looks like you made it. Congrats and welcome!

    I was digagnoed with MS in june.
    with a vertigo problem and called dissabled. :(

    Sorry to hear.


    well cool that was a good turnaround time :)
    Hey Me sorry for myself not a fn chance :)

    sofar I can still get around the house slowly.
    A walk to the mailbox is a little chore now but I'll do it till I just can't anymore.

    My brother has made it a priority to get my house wheelchair acessable
    wich is verry cool.

    the doc's are still trying to figure out what kind of ms i have.
    so i get medicated to see if that one works or not.


    hey and yea my ssi disability is still pending decision.
    that will be good to get, as that was rated at almost 1,200 a month.
    thatl pay the mortgage and most bills.
    will take a strain from my wife as she has a 40hr job still.
    and she is covering alot of the bills now.


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  • From Jason Vierik@1:229/658 to Douglas Connor on Mon Oct 1 21:15:20 2007
    Re: I'm just trying to setup this echo
    By: Douglas Connor to All on Mon Oct 01 2007 07:01 pm

    Looking to ave this echo in my system. as it may be a good place to yak.



    I was digagnoed with MS in june.

    with a vertigo problem and called dissabled. :(



    Sorry to hear that. My sons father was diagnosed a few months ago. I have

    been meaning to read up on it.. I have not gotten around to it yet. Any good

    websites to start?





    Jason - W8ZZU

    Total Logged Contacts = 1056

    Last 5 Contacts:

    ------------------------------------------------------

    | Station | Mode | Band | Location | Date | Time |

    ------------------------------------------------------

    | N8ZSA | FM | 2 | Michigan | 10/2/07 | 00:42 |

    | W2JLB | SSB | 40 | New York | 10/2/07 | 00:27 |

    | W5ROK | SSB | 20 | Texas | 9/30/07 | 19:10 |

    | W5MF | SSB | 20 | Texas | 9/30/07 | 19:08 |

    | K5DX | SSB | 20 | Texas | 9/30/07 | 19:02 |

    ------------------------------------------------------

    --- SBBSecho 2.11-Win32
    * Origin: Scanner Enthusiasts BBS - scannerbbs.dyndns.org (1:229/658)
  • From Doug Connor@1:132/500 to Jason Vierik on Mon Oct 1 22:12:28 2007
    Jason Vierik -> Douglas Connor wrote:
    Re: I'm just trying to setup this echo
    By: Douglas Connor to All on Mon Oct 01 2007 07:01 pm

    Looking to ave this echo in my system. as it may be a good place to yak.



    I was digagnoed with MS in june.

    with a vertigo problem and called dissabled. :(



    Sorry to hear that. My sons father was diagnosed a few months ago. I
    have

    been meaning to read up on it.. I have not gotten around to it yet.
    Any good


    hello Jason
    I know you!! :) ?

    hm that sounds alot like it might be you.
    it sounds alot like my fathers son.:)

    websites to start?

    http://www.nationalmssociety.org/site/PageServer?pagename=HOM_LIVE_newly_diagnosed

    this came from my helper in the voc rehab division at the state building here in springfield.






    Now this is a hobby i have wanted to start since my first CB.



    Jason - W8ZZU

    Total Logged Contacts = 1056

    Last 5 Contacts:

    ------------------------------------------------------

    | Station | Mode | Band | Location | Date | Time |

    ------------------------------------------------------

    | N8ZSA | FM | 2 | Michigan | 10/2/07 | 00:42 |

    | W2JLB | SSB | 40 | New York | 10/2/07 | 00:27 |

    | W5ROK | SSB | 20 | Texas | 9/30/07 | 19:10 |

    | W5MF | SSB | 20 | Texas | 9/30/07 | 19:08 |

    | K5DX | SSB | 20 | Texas | 9/30/07 | 19:02 |

    ------------------------------------------------------

    --- SBBSecho 2.11-Win32
    * Origin: Scanner Enthusiasts BBS - scannerbbs.dyndns.org (1:229/658)


    --
    np: Have You Ever Been (To Electri L:\music\rock\Jimi Hendrix\Electric Ladyland\Have You Ever Been (To Electric Ldyland)(2).mp3 Playing at 192 Kbps 44
    Khz

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    * Origin: <The Harbinger Jamnntpd news://vtdl.net> (1:132/500)
  • From Janis Kracht@1:261/38 to Doug Connor on Mon Oct 1 22:37:34 2007
    Hi Doug,

    Looking to ave this echo in my system.
    as it may be a good place to yak.


    I was digagnoed with MS in june.
    with a vertigo problem and called dissabled. :(

    Glad you found your way here :)

    Thank you for your help and bbs :)

    No problem :)

    Take care,
    Janis

    --- BBBS/LiI v4.01 Flag
    * Origin: Prism bbs (1:261/38)
  • From Janis Kracht@1:261/38 to Doug Connor on Mon Oct 1 22:51:26 2007
    Hi Doug,


    Roger Nelson -> Douglas Connor wrote:
    Looking to ave this echo in my system. as it may be a good place to
    yak.

    Looks like you made it. Congrats and welcome!

    I was digagnoed with MS in june.
    with a vertigo problem and called dissabled. :(

    Sorry to hear.

    well cool that was a good turnaround time :)
    Hey Me sorry for myself not a fn chance :)

    sofar I can still get around the house slowly.
    A walk to the mailbox is a little chore now but I'll do it till I just can't anymore.

    Yep .. you need to :) What I found that was kind of insane was after some attacks it seemed some things were being 'rewired' kind of... So like if this path to my brain didn't work for walking, some other pathway developed.. Maybe I'm just imaginative <grin>. But, I'm still walking.

    My brother has made it a priority to get my house wheelchair acessable
    wich is verry cool.

    the doc's are still trying to figure out what kind of ms i have.
    so i get medicated to see if that one works or not.

    It'll be a while til they really know. Some of the stuff you're on now is pretty powerful.. One year I put in a vermont slate floor in my kitchen while I
    was on some of those meds :) Came out great <g>

    hey and yea my ssi disability is still pending decision.
    that will be good to get, as that was rated at almost 1,200 a month.
    thatl pay the mortgage and most bills.
    will take a strain from my wife as she has a 40hr job still.
    and she is covering alot of the bills now.

    That's good to hear, Doug.

    Take care,
    Janis

    --- BBBS/LiI v4.01 Flag
    * Origin: Prism bbs (1:261/38)
  • From Janis Kracht@1:261/38 to Jason Vierik on Mon Oct 1 22:55:56 2007
    Hi Jason,

    Looking to ave this echo in my system. as it may be a good place to yak.
    I was digagnoed with MS in june.
    with a vertigo problem and called dissabled. :(

    Sorry to hear that. My sons father was diagnosed a few months ago. I have
    been meaning to read up on it.. I have not gotten around to it yet. Any good
    websites to start?

    Here's a couple:

    http://www.nationalmssociety.org/site/PageServer?pagename=hom_gen_homepage http://www.msfacts.org/

    Take care,
    Janis

    --- BBBS/LiI v4.01 Flag
    * Origin: Prism bbs (1:261/38)
  • From Doug Connor@1:132/500 to Janis Kracht on Mon Oct 1 23:33:14 2007
    Janis Kracht -> Doug Connor wrote:
    Hi Doug,


    Roger Nelson -> Douglas Connor wrote:

    Looking to ave this echo in my system. as it may be a good place to

    yak.


    Looks like you made it. Congrats and welcome!


    I was digagnoed with MS in june.
    with a vertigo problem and called dissabled. :(


    Sorry to hear.


    well cool that was a good turnaround time :)
    Hey Me sorry for myself not a fn chance :)


    sofar I can still get around the house slowly.
    A walk to the mailbox is a little chore now but I'll do it till I just
    can't
    anymore.


    Yep .. you need to :) What I found that was kind of insane was after
    some attacks it seemed some things were being 'rewired' kind of... So like if this path to my brain didn't work for walking, some other
    pathway developed.. Maybe I'm just imaginative <grin>. But, I'm still walking.

    I have seem to notice little things like that happening.
    my hands and feet started to itch in a way not scratchable and
    my balance got better kinda.

    good thing because my attention was on my hands.


    My brother has made it a priority to get my house wheelchair acessable
    wich is verry cool.


    the doc's are still trying to figure out what kind of ms i have.
    so i get medicated to see if that one works or not.


    It'll be a while til they really know. Some of the stuff you're on now
    is pretty powerful.. One year I put in a vermont slate floor in my
    kitchen while I was on some of those meds :) Came out great <g>


    yea i'll likely pick up a pan or and do some cooking (to my wifes delight)


    hey and yea my ssi disability is still pending decision.
    that will be good to get, as that was rated at almost 1,200 a month.
    thatl pay the mortgage and most bills.
    will take a strain from my wife as she has a 40hr job still.
    and she is covering alot of the bills now.


    That's good to hear, Doug.



    --
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    --- Mozilla Thunderbird 1.0.6 (Windows/20050716)
    * Origin: <The Harbinger Jamnntpd news://vtdl.net> (1:132/500)
  • From Jason Vierik@1:229/658 to Doug Connor on Mon Oct 1 23:56:26 2007
    Re: I'm just trying to setup this echo
    By: Doug Connor to Jason Vierik on Mon Oct 01 2007 10:12 pm

    hello Jason

    I know you!! :) ?



    From where?



    hm that sounds alot like it might be you.

    it sounds alot like my fathers son.:)



    huh?



    websites to start?

    http://www.nationalmssociety.org/site/PageServer?pagename=HOM_LIVE_newly_di

    agnosed



    OK, thanks. I will check that out.



    Now this is a hobby i have wanted to start since my first CB.



    Best of luck.. I enjoy it.





    Jason - W8ZZU

    Total Logged Contacts = 1063

    Last 5 Contacts:

    ----------------------------------------------------------

    | Station | Mode | Band | Location | Date | Time |

    ----------------------------------------------------------

    | WX3B | SSB | 40 | Maryland | 10/2/07 | 02:55 |

    | K1TSW | SSB | 40 | New Jersey | 10/2/07 | 02:36 |

    | KB1PAJ | SSB | 40 | Connecticut | 10/2/07 | 02:19 |

    | W8QDX | SSB | 40 | Connecticut | 10/2/07 | 02:16 |

    | KD0BAI | SSB | 40 | Colorado | 10/2/07 | 02:11 |

    ----------------------------------------------------------

    --- SBBSecho 2.11-Win32
    * Origin: Scanner Enthusiasts BBS - scannerbbs.dyndns.org (1:229/658)
  • From Jason Vierik@1:229/658 to Janis Kracht on Tue Oct 2 00:46:58 2007
    Re: I'm just trying to setup this echo
    By: Janis Kracht to Jason Vierik on Mon Oct 01 2007 10:55 pm

    Here's a couple:



    http://www.nationalmssociety.org/site/PageServer?pagename=hom_gen_homepage

    http://www.msfacts.org/



    Thanks, Janis. I will check those out as well. :)





    Jason - W8ZZU

    Total Logged Contacts = 1063

    Last 5 Contacts:

    ----------------------------------------------------------

    | Station | Mode | Band | Location | Date | Time |

    ----------------------------------------------------------

    | WX3B | SSB | 40 | Maryland | 10/2/07 | 02:55 |

    | K1TSW | SSB | 40 | New Jersey | 10/2/07 | 02:36 |

    | KB1PAJ | SSB | 40 | Connecticut | 10/2/07 | 02:19 |

    | W8QDX | SSB | 40 | Connecticut | 10/2/07 | 02:16 |

    | KD0BAI | SSB | 40 | Colorado | 10/2/07 | 02:11 |

    ----------------------------------------------------------

    --- SBBSecho 2.11-Win32
    * Origin: Scanner Enthusiasts BBS - scannerbbs.dyndns.org (1:229/658)
  • From Piper Christian Vierik@1:229/658 to Douglas Connor on Tue Oct 2 00:47:28 2007
    Re: I'm just trying to setup this echo
    By: Douglas Connor to All on Mon Oct 01 2007 07:01 pm

    Looking to ave this echo in my system. as it may be a good place to yak.

    I was digagnoed with MS in june.

    with a vertigo problem and called dissabled. :(



    Welcome, my son's father has MS as well. I don't know much about it (he and I

    aren't together anymore) but he seems to be doing alright now that he's got it

    more or less under control with his meds (although I hear [from him] that the

    meds have some really nasty side effects).



    Are you still able to work even though you're now "called disabled"?



    Piper Christian

    KC8TEZ

    --- SBBSecho 2.11-Win32
    * Origin: Scanner Enthusiasts BBS - scannerbbs.dyndns.org (1:229/658)
  • From Doug Connor@1:132/500 to Jason Vierik on Tue Oct 2 01:18:58 2007
    Jason Vierik -> Doug Connor (AKA Phipps) wrote:
    Re: I'm just trying to setup this echo
    By: Doug Connor to Jason Vierik on Mon Oct 01 2007 10:12 pm

    hello Jason

    I know you!! :) ?



    From where?

    ACNet

    websites to start?


    http://www.nationalmssociety.org/site/PageServer?pagename=HOM_LIVE_newly_di

    agnosed



    OK, thanks. I will check that out.



    Now this is a hobby i have wanted to start since my first CB.



    Best of luck.. I enjoy it.
    thanx

    --
    np: John Mellencamp - The Best Tha L:\music\rock\John Cougar Mellencamp\The Best That I Could Do 1978 - 1988\Lonely ol' Night(8).mp3 Playing at 192 Kbps 44
    Khz

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  • From Doug Connor@1:132/500 to Piper Christian Vierik on Tue Oct 2 01:39:06 2007
    Piper Christian Vierik -> Douglas Connor wrote:
    Re: I'm just trying to setup this echo
    By: Douglas Connor to All on Mon Oct 01 2007 07:01 pm

    Looking to ave this echo in my system. as it may be a good place to yak.

    I was digagnoed with MS in june.

    with a vertigo problem and called dissabled. :(
    I was hopeing you would step in here :)

    Sorry for my confusion, I have chated with you before your child with jason
    and saw the pictures after was born too

    with out it expressed I asumed that child was whom jason was refering to.


    Welcome, my son's father has MS as well. I don't know much about it (he and I

    aren't together anymore) but he seems to be doing alright now that he's got it

    more or less under control with his meds (although I hear [from him]
    that the

    meds have some really nasty side effects).



    Are you still able to work even though you're now "called disabled"?

    no my workplace put me out on a temp diability because I could not
    stand and run there big machines safely.

    maybe when and if the meds getstraightnd out ill try for a wheelchair job.
    do those exist?




    Piper Christian

    KC8TEZ

    --- SBBSecho 2.11-Win32
    * Origin: Scanner Enthusiasts BBS - scannerbbs.dyndns.org (1:229/658)


    --
    np: Two Old Cats Like Us(6) H:\music\country\hank williams jr\Greatest Hits Vol2\Two Old Cats Like Us(6).mp3 Playing at 192 Kbps 44 Khz

    --- Mozilla Thunderbird 1.0.6 (Windows/20050716)
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  • From Janis Kracht@1:261/38 to Doug Connor on Tue Oct 2 00:07:36 2007
    Hi Doug,

    sofar I can still get around the house slowly.
    A walk to the mailbox is a little chore now but I'll do it till I just
    can't
    anymore.


    Yep .. you need to :) What I found that was kind of insane was after
    some attacks it seemed some things were being 'rewired' kind of... So
    like if this path to my brain didn't work for walking, some other
    pathway developed.. Maybe I'm just imaginative <grin>. But, I'm still
    walking.

    I have seem to notice little things like that happening.
    my hands and feet started to itch in a way not scratchable and
    my balance got better kinda.

    That's good.

    good thing because my attention was on my hands.

    Know what you mean.. sometimes that can drive you nuts.

    My brother has made it a priority to get my house wheelchair acessable
    wich is verry cool.

    the doc's are still trying to figure out what kind of ms i have.
    so i get medicated to see if that one works or not.


    It'll be a while til they really know. Some of the stuff you're on now
    is pretty powerful.. One year I put in a vermont slate floor in my
    kitchen while I was on some of those meds :) Came out great <g>

    yea i'll likely pick up a pan or and do some cooking (to my wifes delight)

    Heh.. that will be good.. Maybe remodel the kitchen while you're in there <bg>

    Take care,
    Janis

    --- BBBS/LiI v4.01 Flag
    * Origin: Prism bbs (1:261/38)
  • From Janis Kracht@1:261/38 to Jason Vierik on Tue Oct 2 09:26:34 2007
    Hi Jason,

    Here's a couple:

    http://www.nationalmssociety.org/site/PageServer?pagename=hom_gen_homepage

    http://www.msfacts.org/

    Thanks, Janis. I will check those out as well. :)

    No problem :) How long has he had MS ? It can have a rough start, but most people have it like I do.. mostly a pia now and again ...

    Take care,
    Janis

    --- BBBS/LiI v4.01 Flag
    * Origin: Prism bbs (1:261/38)
  • From Janis Kracht@1:261/38 to Doug Connor on Tue Oct 2 09:38:26 2007
    Hi Doug,

    Are you still able to work even though you're now "called disabled"?

    no my workplace put me out on a temp diability because I could not
    stand and run there big machines safely.

    maybe when and if the meds getstraightnd out ill try for a wheelchair job.
    do those exist?

    Hey, don't forget computer-related jobs. Once you have the energy and are feeling up to it, there are certainly jobs you can do. These days a lot of people work from their homes doing a number of different jobs on their systems.
    Besides Ron and I who design/develop software, I know of two radiologists in NYC who work from their home.

    Or who knows.. you might decide to go back to school (again, you can do it all online these days) to get a handle on some aspect of the computer industry you'd never thought about.

    :)

    Take care,
    Janis

    --- BBBS/LiI v4.01 Flag
    * Origin: Prism bbs (1:261/38)
  • From Cindy Haglund@1:124/6308.20 to Douglas Connor on Tue Oct 2 09:48:58 2007
    0n (01 Oct 07) Douglas Connor wrote to All...

    Looking to ave this echo in my system. as it may be a good place to
    yak.

    I was digagnoed with MS in june.
    with a vertigo problem and called disabled. :(

    Yeah and you know what .... the biggest problem with being disabled
    isn't the disability itself but the people whose attitude renders us
    subhuman; as objects of pity.

    cindy

    ... Never forget: 2 + 2 = 5 for extremely large values of 2.

    --- PPoint 3.01
    * Origin: Up a palm tree (1:124/6308.20)
  • From Cindy Haglund@1:124/6308.20 to Janis Kracht on Tue Oct 2 09:54:58 2007
    0n (01 Oct 07) Janis Kracht wrote to Douglas Connor...

    Hi Doug!

    Looking to ave this echo in my system.
    as it may be a good place to yak.

    I was diagnosed with MS in june.
    with a vertigo problem and called disabled. :(

    Glad you found your way here :)

    Me too. I have been advised by hearing kin to 'find my own kind'....
    Well I guess! I have! They're all people in cyberspace.... What is
    'my kind' anyway? I guess , 'my kind' is the kind who love to chat!
    And are not limited to speech hearing.

    You know what I find buzzard? Hearing people who won't use
    cybercommunication. I find this buzzard.

    As in "I can't talk to you because you can't hear"....

    I feel like screaming, "can you read????" But mostly I just give up on
    them in exasperation because experience has proven talking them into
    using alternate methods is like trying to convince a flat Earther the
    Earth isn't flat.

    Then I start to swear. I have to chill out and learn to cop a sense of
    humor. My beloved sister reminds me that people are shallow and tend to
    think only of themselves. Don't take their attitude personally. She is
    right. Don't take their attitude personally.

    She means: It's not because of you (being deaf) they don't want to
    cyber communicate, it's they don't want to cyberchat with anybody!

    I'm still getting this notion to sink into my thick skull.... it
    really is good medicine. Just don't give ding about people like that.
    Don't care! Simply don't care is all. Tune them out the same way they
    tune me out. Amen!

    Maybe they need smack of a good solid life altering disability
    to make them appreciate alternate methods of doing things.

    I have seen this happen in fact and then OH BOY are they s

    Note on MS: please research online as there are many many very good
    support groups. And even though this sounds cruel, please if it
    helps... just remember this when you are down, " At least I can
    hear"... please. Again I know this is mean to say- but believe me,
    even though we who are latent deaf 'get used to it' as any of us do to
    a disability- as said- the hardest part to get used to is the attitude
    of the hearing world. I guess I TOO count my blessings. I do. Yes there
    are worse things than being deaf. And, sorry I know it's a sorry fate
    indeed but the worse thing is not MS.


    Cindy

    ... Cats: Murphy's way of saying, "Nice furniture!"

    --- PPoint 3.01
    * Origin: Up a palm tree (1:124/6308.20)
  • From Janis Kracht@1:261/38 to Cindy Haglund on Tue Oct 2 12:29:42 2007
    Hello Cindy,

    Looking to ave this echo in my system.
    as it may be a good place to yak.

    I was diagnosed with MS in june.
    with a vertigo problem and called disabled. :(

    Glad you found your way here :)

    Me too.

    Yes, same here. Doug's coming down with MS was quite a surprise to him, no doubt.

    It can happen to anyone, at any age, though I first got it when I was 24 years old. It was a bit of a hassle to say the least <grin>

    I have been advised by hearing kin to 'find my own kind'....
    Well I guess! I have! They're all people in cyberspace.... What is
    'my kind' anyway? I guess , 'my kind' is the kind who love to chat!
    And are not limited to speech hearing.

    Find your own kind?? Lol, what a line! :) I bet you had to hold off from slamming them in the head <laugh> I don't know if I could have :) :) :)

    You know what I find buzzard? Hearing people who won't use cybercommunication. I find this buzzard.
    As in "I can't talk to you because you can't hear"....

    That's probably people afraid of technology, that's all I can guess..

    I feel like screaming, "can you read????" But mostly I just give up on
    them in exasperation because experience has proven talking them into
    using alternate methods is like trying to convince a flat Earther the
    Earth isn't flat.

    Then I start to swear. I have to chill out and learn to cop a sense of
    humor. My beloved sister reminds me that people are shallow and tend to
    think only of themselves. Don't take their attitude personally. She is
    right. Don't take their attitude personally.

    Yep, that is very true.

    She means: It's not because of you (being deaf) they don't want to
    cyber communicate, it's they don't want to cyberchat with anybody!

    That's what it would seem like to me.


    Note on MS: please research online as there are many many very good
    support groups. And even though this sounds cruel, please if it
    helps... just remember this when you are down, " At least I can
    hear"...


    Actually deafness, blindness, and much more can be a part of MS. It depends on
    the type of MS you have, moreso what part of your brain is being affected at the time. For me, it happens with Replapsing/Remitting MS like I have, "now and then".. When MS first hit my ears and eyes, my right ear was just "gone" one day, and so was my vision in both eyes. My vision and hearing came back though. For some people with MS, it never comes back.

    please. Again I know this is mean to say- but believe me,
    even though we who are latent deaf 'get used to it' as any of us do to
    a disability- as said- the hardest part to get used to is the attitude
    of the hearing world.

    That can be very true :) I just ignore the idiots in the world.. It's their problem, not mine <g>

    I guess I TOO count my blessings. I do. Yes there
    are worse things than being deaf. And, sorry I know it's a sorry fate
    indeed but the worse thing is not MS.

    I would never try to categorize someone's disability as "better" or "worse" or "easier to take" or anything like that, but I will say that getting MS did force me to look at my life in a different way. I taught myself to program computers, and then I taught Ron <grin>... I don't know if I would have even bothered to get a computer way back then if I hadn't gottten MS <grin>. Sometimes it takes a shock to one's system to realize one's potential.

    Take care,
    Janis

    --- BBBS/LiI v4.01 Flag
    * Origin: Prism bbs (1:261/38)
  • From Doug Connor@1:132/500 to Janis Kracht on Tue Oct 2 11:47:22 2007
    Janis Kracht -> Jason Vierik wrote:
    Hi Jason,

    Here's a couple:


    http://www.nationalmssociety.org/site/PageServer?pagename=hom_gen_homepage



    http://www.msfacts.org/


    Thanks, Janis. I will check those out as well. :)


    No problem :) How long has he had MS ? It can have a rough start, but most people have it like I do.. mostly a pia now and again ...

    http://www.msif.org/en/
    Michael Dukelsky gave me this international ms link.


    --
    np: Dolly Pardon - Coat Of Many Colors L:\music\country singles\Dolly Pardon - Coat Of Many Colors.mp3 Playing at 192 Kbps 44 Khz

    --- Mozilla Thunderbird 1.0.6 (Windows/20050716)
    * Origin: <The Harbinger Jamnntpd news://vtdl.net> (1:132/500)
  • From Doug Connor@1:132/500 to Janis Kracht on Tue Oct 2 11:55:24 2007
    Janis Kracht -> Doug Connor wrote:
    Hi Doug,

    sofar I can still get around the house slowly.
    A walk to the mailbox is a little chore now but I'll do it till I just
    can't
    anymore.



    Yep .. you need to :) What I found that was kind of insane was after
    some attacks it seemed some things were being 'rewired' kind of... So
    like if this path to my brain didn't work for walking, some other
    pathway developed.. Maybe I'm just imaginative <grin>. But, I'm still
    walking.


    I have seem to notice little things like that happening.
    my hands and feet started to itch in a way not scratchable and
    my balance got better kinda.


    That's good.

    good thing because my attention was on my hands.


    Know what you mean.. sometimes that can drive you nuts.

    My brother has made it a priority to get my house wheelchair acessable
    wich is verry cool.


    the doc's are still trying to figure out what kind of ms i have.
    so i get medicated to see if that one works or not.



    It'll be a while til they really know. Some of the stuff you're on now
    is pretty powerful.. One year I put in a vermont slate floor in my
    kitchen while I was on some of those meds :) Came out great <g>


    yea i'll likely pick up a pan or and do some cooking (to my wifes
    delight)


    Heh.. that will be good.. Maybe remodel the kitchen while you're in
    there <bg>

    Yea especaly at the beguinings of the month while the seroids are
    highly active.


    --
    np: Eric Clapton - Unplugged - (9) H:\music\rock\Eric Clapton\Unplugged\(9) Walkin' Blues.mp3 Playing at 192 Kbps 44 Khz

    --- Mozilla Thunderbird 1.0.6 (Windows/20050716)
    * Origin: <The Harbinger Jamnntpd news://vtdl.net> (1:132/500)
  • From Jason Vierik@1:229/658 to Doug Connor on Tue Oct 2 11:47:22 2007
    Re: MS
    By: Doug Connor to Jason Vierik on Tue Oct 02 2007 01:18 am

    I know you!! :) ?



    From where?



    ACNet



    OK. I am looking for a QWK hub for them. I haven't carried ACNet in over a

    year now. Do you know who the QWK hub is for them or where I can get an

    infopack?





    Jason - W8ZZU

    Total Logged Contacts = 1063

    Last Contact: WX35 on 40M SSB. Location: Maryland, USA. 10/2/07 at 02:55 UTC



    --- SBBSecho 2.11-Win32
    * Origin: Scanner Enthusiasts BBS - scannerbbs.dyndns.org (1:229/658)
  • From Jason Vierik@1:229/658 to Janis Kracht on Tue Oct 2 11:48:44 2007
    Re: MS
    By: Janis Kracht to Jason Vierik on Tue Oct 02 2007 09:26 am

    Thanks, Janis. I will check those out as well. :)



    No problem :) How long has he had MS ? It can have a rough start, but most

    people have it like I do.. mostly a pia now and again ...





    Just a few months now.. About the same amount of time as Doug.





    Jason - W8ZZU

    Total Logged Contacts = 1063

    Last Contact: WX35 on 40M SSB. Location: Maryland, USA. 10/2/07 at 02:55 UTC



    --- SBBSecho 2.11-Win32
    * Origin: Scanner Enthusiasts BBS - scannerbbs.dyndns.org (1:229/658)
  • From Doug Connor@1:132/500 to Janis Kracht on Tue Oct 2 12:02:44 2007
    Janis Kracht -> Doug Connor wrote:
    Hi Doug,

    Are you still able to work even though you're now "called disabled"?


    no my workplace put me out on a temp diability because I could not
    stand and run there big machines safely.


    maybe when and if the meds getstraightnd out ill try for a wheelchair
    job.
    do those exist?


    Hey, don't forget computer-related jobs. Once you have the energy and
    are feeling up to it, there are certainly jobs you can do. These days a lot of people work from their homes doing a number of different jobs on their systems. Besides Ron and I who design/develop software, I know of two radiologists in NYC who work from their home.

    Or who knows.. you might decide to go back to school (again, you can do
    it all online these days) to get a handle on some aspect of the computer industry you'd never thought about.

    :)

    yea i'm still keeping in touch with the vocational rehab case workers. :)
    I have taken several of there microsoft office tests (computer skills tests)

    MS == microsoft
    Maybe i just need to figure out how to reboot?:))


    --
    np: You Don't Know How Lucky You A L:\music\country\Patty Loveless\Only What I Feel\You Don_t Know How Lucky You Are(7).mp3 Playing at 192 Kbps 44 Khz

    --- Mozilla Thunderbird 1.0.6 (Windows/20050716)
    * Origin: <The Harbinger Jamnntpd news://vtdl.net> (1:132/500)
  • From Doug Connor@1:132/500 to Cindy Haglund on Tue Oct 2 12:17:06 2007
    Cindy Haglund -> Douglas Connor wrote:
    0n (01 Oct 07) Douglas Connor wrote to All...

    Looking to ave this echo in my system. as it may be a good place to
    yak.

    I was digagnoed with MS in june.
    with a vertigo problem and called disabled. :(

    Yeah and you know what .... the biggest problem with being disabled
    isn't the disability itself but the people whose attitude renders us subhuman; as objects of pity.

    yea still trying to get my wife out of that frame of mind.


    --
    np: Sink The Pink(4) H:\music\rock\Ac-Dc\Who Made Who\Sink The Pink(4).mp3 Playing at 192 Kbps 44 Khz

    --- Mozilla Thunderbird 1.0.6 (Windows/20050716)
    * Origin: <The Harbinger Jamnntpd news://vtdl.net> (1:132/500)
  • From Doug Connor@1:132/500 to Jason Vierik on Tue Oct 2 12:32:32 2007
    Jason Vierik -> Doug Connor wrote:
    Re: MS
    By: Doug Connor to Jason Vierik on Tue Oct 02 2007 01:18 am

    I know you!! :) ?



    From where?



    ACNet



    OK. I am looking for a QWK hub for them. I haven't carried ACNet in
    over a

    year now. Do you know who the QWK hub is for them or where I can get an

    infopack?

    here is my info stuff and other needed files http://vtdl.net/share/ac_admin

    Sniper is doing the qwk gate:

    ͻ
    ɼ o o
    ͹ ͻ ͹ ɻ ͹ ͻ ͻ ɻ
    Ȼ ͼ
    ͼ ͼ ȼ ͼ ȼ ͼ ȼ
    Proudly running SynchroNet BBS Software

    Telnet://kiabbs.org 24/7/365 8 nodes!
    http://kiabbs.org <New Interface>
    FTP://kiabbs.org 3mb/384k DSL Connection

    --
    np: Can't Fight This Feeling(6) L:\music\rock\REO Speedwagon\Wheels Are Turnin'\Can't Fight This Feeling(6).mp3 Playing at 192 Kbps 44 Khz

    --- Mozilla Thunderbird 1.0.6 (Windows/20050716)
    * Origin: <The Harbinger Jamnntpd news://vtdl.net> (1:132/500)
  • From Janis Kracht@1:261/38 to Doug Connor on Tue Oct 2 13:08:56 2007
    http://www.nationalmssociety.org/site/PageServer?pagename=hom_gen_homepage >>>> http://www.msfacts.org/


    Thanks, Janis. I will check those out as well. :)


    No problem :) How long has he had MS ? It can have a rough start, but
    most people have it like I do.. mostly a pia now and again ...

    http://www.msif.org/en/
    Michael Dukelsky gave me this international ms link.

    That's one of the nicest ones I've seen, Thanks :)

    Janis

    --- BBBS/LiI v4.01 Flag
    * Origin: Prism bbs (1:261/38)
  • From Janis Kracht@1:261/38 to Jason Vierik on Tue Oct 2 13:33:34 2007
    Hi Jason,


    No problem :) How long has he had MS ? It can have a rough start, but most >> people have it like I do.. mostly a pia now and again ...



    Just a few months now.. About the same amount of time as Doug.

    Ok. Things may be rough in the beginning for him, hopefully they'll even out.

    I saw your comments about the meds used.. yeah, they can be rough. But the cortisone type do help with the inflammation in the nerve endings causing problems. If he's taking one of the so-called CRAB drugs (injectible, regular shots), they might be able to keep things from getting worse. Here's best of hope for him!

    Take care,
    Janis

    --- BBBS/LiI v4.01 Flag
    * Origin: Prism bbs (1:261/38)
  • From Janis Kracht@1:261/38 to Doug Connor on Tue Oct 2 13:39:04 2007
    Hi Doug,

    It'll be a while til they really know. Some of the stuff you're on now >>>> is pretty powerful.. One year I put in a vermont slate floor in my
    kitchen while I was on some of those meds :) Came out great <g>

    yea i'll likely pick up a pan or and do some cooking (to my wifes
    delight)

    Heh.. that will be good.. Maybe remodel the kitchen while you're in
    there <bg>

    Yea especaly at the beguinings of the month while the seroids are
    highly active.

    The hardest darn thing to do sometimes though, is not burn yourself out.. keep that in mind :) I'm sure you know what I mean.. you get so darn wired and full
    of energy, you have to really keep yourself from over-doing it ..

    Luckily, Ron's pulse is only 60, so when I would get so overcharged, he'd be there saying, "Take it easy!!!" Lol Worked for us <grin>

    Take care,
    Janis

    --- BBBS/LiI v4.01 Flag
    * Origin: Prism bbs (1:261/38)
  • From Cindy Haglund@1:124/6308.20 to Janis Kracht on Tue Oct 2 11:57:52 2007
    Yes, same here. Doug's coming down with MS was quite a surprise to
    him, no doubt.

    Unanticipated changes in our health are like that which is why those
    of us who must bear those unforeseen changes can not help but be annoyed
    by those who complain about well-warned/anticipated bad health
    they brought on by their own actions (but readily blame someone or
    something else.) I do not think I need to illustrate. We see it-
    stupidity- all around every day and all we can do is sum it up with a
    shrug and a sigh. BUT above all: a sense of humor.

    Great book: "i've got a brain tumor, what's your excuse?" ((Google
    this it's on amazon.com)) It's a very witty self effacing autobio
    about a writer who struggled to regain damage to her speech center
    after having brain surgery. The book itself is her therapy. :)
    I'll get the author's name if y'all want. I did post it once here
    awhile ago. Hmm. Loved that book.
    ...........


    Find your own kind?? Lol, what a line! :) I bet you had to hold off
    from slamming them in the head <laugh> I don't know if I could have
    :) :) :)

    THANK YOU! Bless you bless you bless you!!! You don't know how close
    I had come to wanting to do that very thing. Then I had to wrestle
    with myself saying : they don't mean it in the mean castigating way it
    sounds. They feel, I do believe- on the surface: we'd simply be happier
    with our own kind. But actually they're saying this:

    "I'm a chicken and can't stand being around you. You make me feel uncomfortable. I can't POSSIBLY communicate with you in any way other
    than speech/hearing. I can't do this cyber thing or that ASL thing.
    OOOH talking with fingers is crazy people talk!!! I can't! I simply CAN'T
    AND I WON'T and nobody else wants to either so just go away.... "

    That is what they are actually saying though if you confront them
    they'll get further bent out of shape and accuse you of being
    paranoid. As in: "what? We're ignoring YOu? NO we're not ignoring you.
    What's their to ignore? You're not there!!! Now be a good dog and go
    lay down and be quiet!"


    Two words not printable here to them. And the Italian Brush off made
    famous by the Godfather (TM) besides.

    That is to say: If they tune you out Your best recourse is to simply
    DO the Same. Amen. My own kind. LOL. Now come to think of it that is
    kind a funny!!!
    ................................

    That's probably people afraid of technology, that's all I can guess..

    Yep. And I am slowly forcing myself to accept that the Problem is
    with THEM. Not me. And I shouldn't take it personally that THEY can't
    and won't bother to learn other ways to communicate.. with ANYONE, not
    just me. But ANYBODY. This 'don't take it personally' has been a hard
    thing to master. I mean when someone suggests you 'don't take it
    personally' and you don't know how, then you learn somehow. The way I
    learned and am still learning is: 'Don't Care. Because their
    intolerance is not my problem.' (IOW the difficulty in learning this
    sill lies in realizing whose problem it is... and disassociating one's
    own experiences with it. )

    .............

    Note on MS: please research online as there are many many very good support groups. And even though this sounds cruel, please if it
    helps... just remember this when you are down, " At least I can
    hear"...

    Actually deafness, blindness, and much more can be a part of MS. It depends on the type of MS you have, more so what part of your brain is

    I know. I've an aunt and a cousin inflicted with it. Oddly the
    daughter came down with it first, then her mother. I often do wonder
    now if they regret being so vain- especially toward me. Pretty harsh
    way to learn a lesson.

    IOW: If "you" dislike someone because they're different by no fault of
    their own: just wait!

    You'd think this sort of thing would make people think twice before
    castigating someone- but it doesn't. Few people seldom learn the easy way.
    *by example.

    I hate to sound spiteful and yes I KNOW it is spiteful! But ...
    uh do I have to say it?

    To those who have cast me out because I am deaf, but now they suffer
    conditions they can do nothing to change either and by no fault of
    their own: I got my cross to bear, that the likes of you made all the heavier... now you got yours. Sorry, but don't expect sympathy or
    even empathy- from me. I'll never say this. But I feel it. I make it
    go away because I know it's not healthy to be spiteful- and anything
    unhealthy isn't worth the added burden considering the source-
    taking on.

    ..................................

    being affected at the time. For me, it happens with
    Replapsing/Remitting MS like I have, "now and then".. When MS first
    hit my ears and eyes, my right ear was just "gone" one day, and so was
    my vision in both eyes. My vision and hearing came back though. For
    some people with MS, it never comes back.

    Don't be shocked if when you are in remission someone says you['re
    pretending.... when remission occurs.

    When I could still hear with my right ear (volume more than tone)
    but not at all with the left ear, family members would be confused
    accuse me of only hearing when I wanted to- oh like when they were at my
    right ear for example. Otherwise perfectly intelligent people can't
    figure that out????????

    Then I remind myself that people often know more about their cars and
    sports than they do about their own bodies. I find it strange that we
    should be strangers to our bodies. Even squeamish. Weird.

    .......................

    please. Again I know this is mean to say- but believe me,
    even though we who are latent deaf 'get used to it' as any of us do
    to > a disability- as said- the hardest part to get used to is the attitude > of the hearing world.

    That can be very true :) I just ignore the idiots in the world.. It's their problem, not mine <g>

    I'm with you Janis thank you for giving me the strength to do so as
    well. I guess I just need some company. Exactly that: their
    intolerance isn't MY problem. It's theirs.
    ......

    I guess I TOO count my blessings. I do. Yes there
    are worse things than being deaf. And, sorry I know it's a sorry
    fate > indeed but the worse thing is not MS.

    I would never try to categorize someone's disability as "better" or

    I know. It's an old byproduct habit where when we (most of us?)
    were little and feeling sorry for ourselves for one reason or another
    over something we couldn't do anything about but accept and move on
    with- we were supposed to be comforted with "think of someone worse off"...

    I have always hated that because then you're feeling better off some one
    else's misfortune. Yet again I guess .. it works. It's part of that
    'Count Your Blessings" deal. I do suppose we can find things as
    blessings that don't include those worse off than ourselvs?

    When it comes to being stuck in Texas for example I like to think:
    better than being stuck up north. (Which is where I am from but do not
    want to return to as I am very adverse to northern winters.) ..........................

    "worse" or "easier to take" or anything like that, but I will say that getting MS did force me to look at my life in a different way. I

    I know which is why I feel ashamed when I do what I said up there. I
    have to remember too that- for example- those who hear can't empathize
    with the deaf so when they whine about loud noise say- telling them be glad
    you can hears, doesn't compute with them at all. ...............................

    taught myself to program computers, and then I taught Ron <grin>... I don't know if I would have even bothered to get a computer way back
    then if I hadn't gottten MS <grin>. Sometimes it takes a shock to
    one's system to realize one's potential.

    That's adapting; channeling energies abilities positively :) And that
    is great!

    We are very fortunate to have this technology. Very much indeed.

    cindy

    ... 'Nuff said.

    --- PPoint 3.01
    * Origin: Up a palm tree (1:124/6308.20)
  • From Cindy Haglund@1:124/6308.20 to Doug Connor on Tue Oct 2 16:30:48 2007
    Yeah and you know what .... the biggest problem with being disabled
    isn't the disability itself but the people whose attitude renders us subhuman; as objects of pity.

    yea still trying to get my wife out of that frame of mind.

    That's what I mean. We have to do the work. I swear this shocked me
    when I realized it. I thought uh we're supposed to get support to help
    us adjust. Instead we have to give support so the un afflicted can
    adjust. OH dear! Well we got to adjust first. Sometimes once we are
    they follow in suit naturally. Sometimes they need a little help
    understanding: we're still people and we still want to enjoy life as
    well as we can.

    Maybe what can help is to say, I do not want pity. Pity won't help me
    or you adjust. I think once that is understood and 'you get used to
    it' it gets easier for our loved ones to 'get used to it' too.


    It's been said the fastest way to learn who your true friends are is
    when you're faced with a life changing situation.

    Few people are able to put their own feelings aside long enough to give
    us their support as we adjust. And they adjust with us.

    Cindy

    --- PPoint 3.01
    * Origin: Up a palm tree (1:124/6308.20)
  • From Jason Vierik@1:229/658 to Doug Connor on Tue Oct 2 19:56:32 2007
    Re: MS
    By: Doug Connor to Jason Vierik on Tue Oct 02 2007 12:32 pm

    here is my info stuff and other needed files http://vtdl.net/share/ac_admin



    Sniper is doing the qwk gate:



    Thanks!





    Jason - W8ZZU

    Total Logged Contacts = 1063

    Last Contact: WX35 on 40M SSB. Location: Maryland, USA. 10/2/07 at 02:55 UTC



    --- SBBSecho 2.11-Win32
    * Origin: Scanner Enthusiasts BBS - scannerbbs.dyndns.org (1:229/658)
  • From Doug Connor@1:132/500 to Cindy Haglund on Tue Oct 2 20:20:00 2007
    Cindy Haglund -> Doug Connor wrote:
    Yeah and you know what .... the biggest problem with being disabled
    isn't the disability itself but the people whose attitude renders us
    subhuman; as objects of pity.

    yea still trying to get my wife out of that frame of mind.

    That's what I mean. We have to do the work. I swear this shocked me
    when I realized it. I thought uh we're supposed to get support to help
    us adjust. Instead we have to give support so the un afflicted can
    adjust. OH dear! Well we got to adjust first. Sometimes once we are
    they follow in suit naturally. Sometimes they need a little help understanding: we're still people and we still want to enjoy life as
    well as we can.
    There is alot of things She doesn't want me to do. (I might get hurt)
    hey if I am stupid enough to try dumb things oh well I wont do it
    again.:)


    Maybe what can help is to say, I do not want pity. Pity won't help me
    or you adjust. I think once that is understood and 'you get used to
    it' it gets easier for our loved ones to 'get used to it' too.
    Naw its not pity realy.
    This is a life changeing experience for her too.
    We just have to stay in sync changeing.



    It's been said the fastest way to learn who your true friends are is
    when you're faced with a life changing situation.

    Few people are able to put their own feelings aside long enough to give
    us their support as we adjust. And they adjust with us.



    --
    np: Garth Brooks - The Thunder Rolls (Long Version) L:\music\country singles\Garth Brooks - The Thunder Rolls (Long Version).mp3 Playing at 192 Kbps
    44 Khz

    --- Mozilla Thunderbird 1.0.6 (Windows/20050716)
    * Origin: <The Harbinger Jamnntpd news://vtdl.net> (1:132/500)
  • From Cindy Haglund@1:124/6308.20 to Doug Connor on Tue Oct 2 21:14:36 2007
    us adjust. Instead we have to give support so the un afflicted can
    adjust. OH dear! Well we got to adjust first. Sometimes once we are
    they follow in suit naturally. Sometimes they need a little help understanding: we're still people and we still want to enjoy life as
    well as we can.

    There is alot of things She doesn't want me to do. (I might get hurt)
    hey if I am stupid enough to try dumb things oh well I wont do it
    again.:)

    There are support groups you can both get a lot of info from. I doubt
    your jugdment is 'what my limits are' has been impaired. A lot of times,
    and this is perfectly understandable our loved ones forget whenjust
    because one part isn't working right doesn't mean other parts aren't.

    All to often the abled forget this and need to be reminded, gently.

    ((A classic example is how people will often YELL at a blind person whose hearing is not impaired.))

    Another example is how hearing people forget deaf people can see.

    .....


    Maybe what can help is to say, I do not want pity. Pity won't help me
    or you adjust. I think once that is understood and 'you get used to
    it' it gets easier for our loved ones to 'get used to it' too.

    Naw its not pity realy.

    It's worry. I think. If this is new then you're all adjusting. It has
    been said the human brain can get used to anything. We do adjust
    eventually. It's the what/how and all we need to work through.

    This is a life changeing experience for her too.
    We just have to stay in sync changeing.

    Yes it is and it's commendable of you to recognize that.

    C. :)

    --- PPoint 3.01
    * Origin: Up a palm tree (1:124/6308.20)
  • From Janis Kracht@1:261/38 to Cindy Haglund on Tue Oct 2 23:06:18 2007
    Hi Cindy,

    Find your own kind?? Lol, what a line! :) I bet you had to hold off
    from slamming them in the head <laugh> I don't know if I could have
    :) :) :)

    THANK YOU! Bless you bless you bless you!!! You don't know how close
    I had come to wanting to do that very thing.

    Ah, I probably do know somewhat <bg>.. there have been times when I've had to hold back on what a person deserves for comments such as that one :)

    [...]

    Two words not printable here to them. And the Italian Brush off made
    famous by the Godfather (TM) besides.

    No kidding :)

    Note on MS: please research online as there are many many very good
    support groups. And even though this sounds cruel, please if it
    helps... just remember this when you are down, " At least I can
    hear"...

    Actually deafness, blindness, and much more can be a part of MS. It
    depends on the type of MS you have, more so what part of your brain is

    I know. I've an aunt and a cousin inflicted with it.

    Sorry to hear about that. Not uncommon to find it in families.

    Oddly the
    daughter came down with it first, then her mother. I often do wonder
    now if they regret being so vain- especially toward me.

    One would hope they've thought about it.

    Pretty harsh
    way to learn a lesson.

    People like that have a built-in self-defense mechanism.. don't worry about them, they probably forgot already what problems there were.

    IOW: If "you" dislike someone because they're different by no fault of
    their own: just wait!

    You'd think this sort of thing would make people think twice before castigating someone- but it doesn't. Few people seldom learn the easy way. *by example.

    Very true.

    I hate to sound spiteful and yes I KNOW it is spiteful! But ...
    uh do I have to say it?

    To those who have cast me out because I am deaf, but now they suffer conditions they can do nothing to change either and by no fault of
    their own: I got my cross to bear, that the likes of you made all the heavier... now you got yours. Sorry, but don't expect sympathy or
    even empathy- from me. I'll never say this. But I feel it. I make it
    go away because I know it's not healthy to be spiteful- and anything unhealthy isn't worth the added burden considering the source-
    taking on.

    Sometimes you just have to forget garbage that goes on, and the completely stupid things people say.

    being affected at the time. For me, it happens with
    Replapsing/Remitting MS like I have, "now and then".. When MS first
    hit my ears and eyes, my right ear was just "gone" one day, and so was
    my vision in both eyes. My vision and hearing came back though. For
    some people with MS, it never comes back.

    Don't be shocked if when you are in remission someone says you['re pretending.... when remission occurs.

    Lol, I've heard every one over the course of 30 years, believe me :) :) "You don't look sick", "it's all in your head", etc. etc. etc..

    taught myself to program computers, and then I taught Ron <grin>... I
    don't know if I would have even bothered to get a computer way back
    then if I hadn't gottten MS <grin>. Sometimes it takes a shock to
    one's system to realize one's potential.

    That's adapting; channeling energies abilities positively :) And that
    is great!

    We are very fortunate to have this technology. Very much indeed.

    Yes, we are fortunate :)

    Take care,
    Janis

    --- BBBS/LiI v4.01 Flag
    * Origin: Prism bbs (1:261/38)
  • From Piper Christian Vierik@1:229/658 to Doug Connor on Thu Oct 4 16:08:42 2007
    Re: I'm just trying to setup this echo
    By: Doug Connor to Piper Christian Vierik on Tue Oct 02 2007 01:39 am

    I was hopeing you would step in here :)

    Sorry for my confusion, I have chated with you before your child with jason

    and saw the pictures after was born too

    with out it expressed I asumed that child was whom jason was refering to.

    Are you still able to work even though you're now "called disabled"?

    no my workplace put me out on a temp diability because I could not

    stand and run there big machines safely.

    maybe when and if the meds getstraightnd out ill try for a wheelchair job.

    do those exist?



    Maybe a desk job in the office?



    Piper Christian

    KC8TEZ

    --- SBBSecho 2.11-Win32
    * Origin: Scanner Enthusiasts BBS - scannerbbs.dyndns.org (1:229/658)
  • From Piper Christian Vierik@1:229/658 to Janis Kracht on Thu Oct 4 16:21:52 2007
    Re: MS
    By: Janis Kracht to Jason Vierik on Tue Oct 02 2007 01:33 pm

    No problem :) How long has he had MS ? It can have a rough start, but

    most >> people have it like I do.. mostly a pia now and again ...

    Just a few months now.. About the same amount of time as Doug.

    Ok. Things may be rough in the beginning for him, hopefully they'll even

    out.

    I saw your comments about the meds used.. yeah, they can be rough. But the

    cortisone type do help with the inflammation in the nerve endings causing

    problems. If he's taking one of the so-called CRAB drugs (injectible,

    regular shots), they might be able to keep things from getting worse.

    Here's best of hope for him!



    (I know more about his condition because he's my ex and my son's father...) I

    believe he is taking a CRAB drug (or drugs, I don't think he's on more than one

    but I could be wrong). I know he has to give himself a shot every other day

    (or at least he was doing this, maybe his meds have changed, I donno, we don't

    talk all that often). Last time I checked with him he was doing alright. He

    was back to work and things seemed to be under control. I believe he also has

    the recurring/remitting type of MS like you have.



    Personally it would be make me crazy to have that. One day I'm blind the next

    I'm not (if I should be so lucky to get it back), one day the hearing is gone

    the next it's not. Talk about your body playing psychological games with

    yourself! And scary too!





    Piper Christian

    KC8TEZ

    --- SBBSecho 2.11-Win32
    * Origin: Scanner Enthusiasts BBS - scannerbbs.dyndns.org (1:229/658)
  • From Piper Christian Vierik@1:229/658 to Cindy Haglund on Thu Oct 4 16:30:18 2007
    Re: I'm just trying to setup this echo
    By: Cindy Haglund to Doug Connor on Tue Oct 02 2007 04:30 pm

    It's been said the fastest way to learn who your true friends are is

    when you're faced with a life changing situation.

    Few people are able to put their own feelings aside long enough to give

    us their support as we adjust. And they adjust with us.



    That is sooooooooooo true.



    In high school I had TONS of friends. (not to toot my own horn but)

    Practically everyone knew me (I did stand out a bit though). Then, in my

    senior year I got preganant, all my friends were like "We'll be here for you."

    "Call if you need a babysitter." "blah blah blah"...



    Once my son was born... I can count on one hand how many of my friends stuck

    around to support me (3 that I can think of off the top of my head

    immediately).



    I still see people I went to school with around town and whatnot and we're

    still friendly enough but they're not my friends anymore, not really.



    Piper Christian

    KC8TEZ

    --- SBBSecho 2.11-Win32
    * Origin: Scanner Enthusiasts BBS - scannerbbs.dyndns.org (1:229/658)
  • From Doug Connor@1:132/500 to Piper Christian Vierik on Thu Oct 4 18:13:06 2007
    Piper Christian Vierik -> Doug Connor wrote:
    Re: I'm just trying to setup this echo
    By: Doug Connor to Piper Christian Vierik on Tue Oct 02 2007 01:39 am

    I was hopeing you would step in here :)

    Sorry for my confusion, I have chated with you before your child with
    jason

    and saw the pictures after was born too

    with out it expressed I asumed that child was whom jason was refering
    to.

    Are you still able to work even though you're now "called
    disabled"?

    no my workplace put me out on a temp diability because I could not

    stand and run there big machines safely.

    maybe when and if the meds getstraightnd out ill try for a wheelchair
    job.

    do those exist?



    Maybe a desk job in the office?

    Well maybe, but you see I've been on the grunt side of the work place
    for so long.

    Maybe A good job working with computers or something like that.


    --
    np: Heaven's on Fire(8) L:\music\rock\Kiss\SMashes Trashes & Hits\Heaven's on
    Fire(8).mp3 Playing at 192 Kbps 44 Khz

    --- Mozilla Thunderbird 1.0.6 (Windows/20050716)
    * Origin: <The Harbinger Jamnntpd news://vtdl.net> (1:132/500)
  • From Janis Kracht@1:261/38 to Piper Christian Vierik on Fri Oct 5 16:13:08 2007
    Hi Piper,

    No problem :) How long has he had MS ? It can have a rough start, but
    most >> people have it like I do.. mostly a pia now and again ...
    Just a few months now.. About the same amount of time as Doug.
    Ok. Things may be rough in the beginning for him, hopefully they'll even
    out.
    I saw your comments about the meds used.. yeah, they can be rough. But the >> cortisone type do help with the inflammation in the nerve endings causing
    problems. If he's taking one of the so-called CRAB drugs (injectible,
    regular shots), they might be able to keep things from getting worse.
    Here's best of hope for him!


    (I know more about his condition because he's my ex and my son's father...) I
    believe he is taking a CRAB drug (or drugs, I don't think he's on more than on
    but I could be wrong).


    Yes, sometimes they combine them, but most likely you're right and he's only on
    one of the CRAB drugs, probably a bunch of "other stuff" <grin>

    I know he has to give himself a shot every other day
    (or at least he was doing this, maybe his meds have changed, I donno, we don't
    talk all that often). Last time I checked with him he was doing alright. He

    That's good. The more "normal" things are, the better for him, if you know what I mean.. For some people with MS, stress is what will make things surface sometimes, though it's not always stress :) For me stress is really bad, so I had to make myself stop and look at what's important :)

    was back to work and things seemed to be under control. I believe he also has
    the recurring/remitting type of MS like you have.

    Ok. It's incredible to me the number of people who are being diagnosed with MS
    recently.. It just seems like so many more than before. Of course that could just be that now with better exams, and cat scans, etc. they're actually diagnosing people who've had it all along and didn't 'know' it.

    Personally it would be make me crazy to have that. One day I'm blind the next
    I'm not (if I should be so lucky to get it back), one day the hearing is gone the next it's not. Talk about your body playing psychological games with yourself! And scary too!

    hehe.. well, as Cindy has said, it could be worse.. :) MS for me is just more of the same.. early on I learned to "roll with the punches" that life threw at me. I guess I'm just that kind of person <g>.

    Take care,
    Janis

    --- BBBS/LiI v4.01 Flag
    * Origin: Prism bbs (1:261/38)
  • From Rich Landskroener@1:11/331 to Cindy Haglund on Sat Oct 6 00:26:02 2007
    Re: I'm just trying to setup this echo
    By: Cindy Haglund to Janis Kracht on Tue Oct 02 2007 11:57 am

    When I could still hear with my right ear (volume more than tone)
    but not at all with the left ear, family members would be confused
    accuse me of only hearing when I wanted to- oh like when they were at my
    right ear for example. Otherwise perfectly intelligent people can't
    figure that out????????

    Hi Cindy,
    My wife has the same problem, not so much with her family, but with others. She was born deaf in her left ear. And people think she's ignoring them, even though they are "talking from the left". I mean, heck, I even have to remember sometimes that if I'm talking to her, to be on the right, but she has gotten some looks before where you could tell that the hearing folk were a little peeved thinking she was ignoring them. We are trying to slowly, but surely teach our kids (and myself too) sign language, so in the event she loses hearing in her right ear we'll still be able to communicate.

    Take care...

    Rich Landskroener
    --- SBBSecho 2.11-Win32
    * Origin: the emergency scene - bbs.emergencyscene.net (1:11/331)
  • From Cindy Haglund@1:124/6308.20 to Rich Landskroener on Sat Oct 6 21:39:32 2007
    0n (06 Oct 07) Rich Landskroener wrote to Cindy Haglund...

    Re: I'm just trying to setup this echo
    By: Cindy Haglund to Janis Kracht on Tue Oct 02 2007 11:57 am

    When I could still hear with my right ear (volume more than tone)
    but not at all with the left ear, family members would be confused
    accuse me of only hearing when I wanted to- oh like when they were at my
    right ear for example. Otherwise perfectly intelligent people can't
    figure that out????????

    Hi Cindy,
    My wife has the same problem, not so much with her family, but
    with others. She was born deaf in her left ear. And people think


    But imagine. I was a child and as a child you don't KNOW you're deaf
    in one ear until you're tested and I wasn't tested until 3 rd grade
    and this after an AWFUL LOT of negative treatment by family and
    teachers. Children should be tested for hearing and vision problems
    Before they enter school, before that even. A child can not be
    expected to know they have a problem if you know what I mean. It's up
    to the adults to see to it that the child's needs are met. But you
    know something many parents and adults back in the fifties and even
    today I think... are so dam status quo fixated they put their needs
    first and many a disabled child does not get the help they need to
    become happy able bodied adults as a result.


    she's ignoring them, even though they are "talking from the left". I mean, heck, I even have to remember sometimes that if I'm talking to

    she has keep swiveling her head around I guess. YOu see we can not
    expect the poor abled people to accommodate us. We have to accommodate
    them. This came as a rude shock to me, but that is how it is.

    There are adults who will accommodate the hearing impaired, with no
    problem at all. No resentment, no 'I have to do this for YOU?"... ...
    and they don't expect you to drop down and kiss their feet in
    appreciation though you may feel like doing that because it's so rare
    to be treated like a human being by the hearing world.... For the
    most part it is up to the deaf/hoh to assert themselves to get their
    needs met and with utmost tact and patience to boot!

    I have a dentist who is a wonderful dentist but he is also very
    accommodating and does notes in legible hand writing yet... I didn't
    even have to ask him! This way he asks ME if I have any problems and
    if I have a question later I can email him. I never abuse this
    generosity btw. He is a gem! I had an ob/gyn like this too. It really
    is uplifting to know some hearing people do not see helping you in
    this way as a burden. They are as like unsung heroes. They do not
    expect to be lauded though because they feel their attitude is what
    the norm SHOULD be rather than the exception.


    Then when I had to go to an eye doctor, she would NOT do notes. She
    asked my husband questions instead. I hate that. I hate being spoken
    for! I have to assert myself. If the doctor won't accommodate me I'll
    just go to another doctor!


    Now there are family member we only see two or three times a decade
    due to distance. For the brief time of our visits they can't be
    bothered with notes, body language of any kind nor even email. Who is
    the truly disabled in this case? Hmm. I say FINE! bye!

    BTW. I think we owe it to ourselves to help the hearing disabled to
    know you do not need to learn a special language to communicate with
    the deaf/hoh. Many signs /body language signs are common sense. Signs
    people use every day without even realizing they're using a language
    other than verbal. And many times we can read lips (simple words
    anyway)...

    There are hearing people who would rather you did not exist at all
    than have to 'put themselves out' to communicate with you the way you
    need to be communicated with.

    BTW while the hearing world says 'we pretend not to hear'... they do
    the same thing!!! To us. (As well as each other.)
    .....

    her, to be on the right, but she has gotten some looks before where
    you could tell that the hearing folk were a little peeved thinking she

    Yeah it's always about them isn't it. The hearing only think about
    THEIR feelings. We don't have any. We are a BURDEN TO THEM.

    There is a Hearing Health mag that totes hearing aid stuff and the way
    this mag totes them is to Sympathize with the Hearing would about
    how hard it is to "put up with the ' hearing loss as if the person
    with the hearing loss wasn't suffering at all. As if it were the
    hearing person's loss and not the person enduring the loss personally.

    The hearing put their needs first. So you have to be the bigger person
    and let them know your needs. They're oblivious otherwise.
    ........

    was ignoring them. We are trying to slowly, but surely teach our kids
    (and myself too) sign language, so in the event she loses hearing in
    her right ear we'll still be able to communicate.

    yeah they get so mad at us for "Ignoring THEM" but when we confront
    them for ignoring us, OH it's Not ignoring! You're simply not there.

    So they get mad at you if you go off and read a book because you're not
    a dog.

    cindy
    ,,,,,,,


    --- PPoint 3.01
    * Origin: Up a palm tree (1:124/6308.20)